Sunday, April 18, 2021

Getting more comfortable

 Hi again friends!

Yesterday was another mostly quiet day for our little guy. Some of his blood counts were a little down, but nothing the care team was overly worried about. He did pull a few shenanigans when he dropped his oxygen saturation a couple of times, but the NP threatened to put him on oxygen and suddenly he shaped up and stopped doing it!


The nurses do something they call CARES, where every 4 hours they change his diaper, take some measurements, switch the foot for the pulse-oximeter, take his temperature, moisten his lips, and probably a couple other things I'm forgetting at 5 am. They are great at involving us, and now both Mat and I can basically perform this ritual on our own. I think it's been really great to gain our confidence in touching him and especially changing his diaper. 

Here he is pulling his hat over his own eyes to say "No photos please!" Obviously it didn't work.



He got to video chat with all his grandparents and uncles, which was heart-warming and I think really healing for everyone to get to see him and how great he's doing right now. 

And that's pretty much it. 3 more days until he can hopefully start feeding - woohoo! I'm so looking forward to him being able to get something in his little belly. The nurses tell me that even though the TPN is nourishing him, he still feels his empty belly, and he may start to get crankier about it as he feels better and realizes he's hungry. It's a knife to the heart to hear the he might be crying in hunger and there's nothing we can do to satisfy him. 3 more days.





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